Autoimmune,  Board games,  Daily life,  Fitness

Happy 2014!

I have been missing in action for the past several weeks. I’m here but for some reason I’m at a loss of what to write quite a lot of the time.

We’re just getting through the last month of summer here and it’s been fairly mild for the last couple of weeks. Not to say we haven’t had some hot days but nothing extreme like has occurred in many of the eastern parts of the country and none of the nasty floods that have hit the north of our state. I wouldn’t mind, however, having a small share of the rain from the north. After such a wet late winter, it’s been almost completely dry here since the end of October, I think, perhaps a bit earlier.

January wasn’t a great month for us. The year started off well enough but there were a couple of things happening, family-wise, that left January a rather negative month. I can just hope the year improves from this point.

At the end of the month, our gym membership contracts will run out and we are cancelling our membership with the club. Not that we are unhappy there, but the Scientist reached his goal months ago and I have started to lose much interest in going. My aim at the beginning was to go at least twice a week and aside from a couple weeks at Christmas, I have more than stuck to that for the better part of the eighteen months. Now I am more interested in doing exercise outside the gym like just walking or dog walks, cycling, etc. We also now have a spin cycle and a treadmill in the house, so should be set for even the winter and the really hot days left in the season.

Speaking of the gym, I am still working on my weight and fitness levels. I think the fitness is still pretty good but the weight stalled for quite a while and I have had to overcome some of the psychological aspects of that before getting going again. I also had some shoulder bursitis and tendinitis issues that I couldn’t quite get sorted with physiotherapy alone and had a steroid injection just before Christmas. With further physio, some of the shoulder issues have improved enough so I just need to make sure I don’t overdo any particular type of exercise again. Anyway, after some ups and downs, I think I am back on track for the moment.

I saw my new immunologist for the second time on Saturday. She had requested I have certain blood tests done and the results were back well before the appointment. They also sent copies directly to me. Overall, the results were all fine but I can’t help but be a bit pedantic about one thing that showed up. I’ve been getting a high titer ANA back every test since the first one back in 2004. This time was no different but there was a completely different sort of pattern to the ones that have appeared before. It was a different lab so my feeling is it was misread. My doctor wasn’t bothered about, didn’t really seem to know the pattern differences either. My usual pattern is rare but associated with Sjögren’s syndrome (which I have) and also autoimmune liver disease. Because of the pattern, previous doctors were keeping watch for a couple of liver-related antigens in blood work. These never were positive in the past but one associated with autoimmune hepatitis did come back a weak positive this time, which is rather funny, I think. At the moment, it isn’t so much of an issue due to it being weak-positive but mostly due to the fact almost all my liver functions tests came back in normal range. Only my albumin was slightly low…so also isn’t an issue at this point. At the moment, I will just go back for yearly reviews as I’ve done since my symptoms haven’t been anything major as yet.

Today I went in for a whole blood donation and was asked to give plasma instead. I was a bit surprised since it’s been so long since they’ve requested whole blood. Plus I thought they really wanted it this time as I got more reminders than usual. I’ve become acquainted with some of the staff at the center since I began donating, to the point that some of the staff skip quite a few of the questions. But the last couple of times, I have gotten new people and they have gotten into detail on some questions. Strangely it came out today that nobody thought to note down the Sjögren’s syndrome on my records before. The lady that interviewed me had never even heard of it so then went on to check it was okay to donate. Which it was.

Our board games have sat rather untouched the past two months. At first, Lego Lover wasn’t interested in playing but then we missed it one weekend or another and just haven’t got back to it. Meanwhile, we’ve had a few more games arrive lately so we need to get back into it.

There are probably some other things I need to update but honestly can’t think of anything now. I just wanted to get back into it keeping track of things a bit more before more time passed.

 

 

Leave a Reply

Your email address will not be published. Required fields are marked *