History repeats
It’s hard for me to believe it but it’s now been eight or nine years since Lego Lover was officially diagnosed with high-functioning autism. I suppose it is not so incredible when I consider he was only five at the time…But it doesn’t always seem so long ago. And yet it was the better part of his lifetime ago. I remember it was a reader of this blog who drew my attention to a condition called Asperger’s syndrome by forwarding a link to a news article. I’d never heard of it before although I was slightly aware of  (classic) autism. After reading the article I was half convinced Lego Lover had Asperger’s and half convinced that he didn’t. Recently I was reminded of something else that came to mind while reading the article. I remember thinking that half the traits seemed to fit Lego Lover and the other half seemed to fit Game Fanatic. If you put those two halves together you’d have a perfect Aspie. I didn’t give that too much more thought at the time, aside from it motivating me to eventually seek assessment for Lego Lover due to the difficulties that arose from some of his issues.
Strangely I hadn’t recalled that thought for many years but it came to mind recently while discussing Game Fanatic with the clinical psychologist who has worked with us for several years. Game Fanatic has long had a variety of issues like anxiety and obsessive compulsive disorder causing considerable impact on his life. Every so often red flags would go up that put me in mind of Asperger’s syndrome but then I would think about the overall picture and it just didn’t fit. It’s been an occasional topic of discussion with the psychologist over the past few years but it never went much further than that. That’s all changed recently as we revisited this topic and it seems that perhaps Game Fanatic may very well have Asperger’s. We spent our last two sessions discussing this more in-depth and there’s enough evidence from our talks to now to support the possibility. We are currently looking for a psychiatrist who has experience with autism and Asperger’s syndrome in older teens and adults to seek further advice and assessment.
It’s strange to be on this path again after so many years. It is familiar and yet it will be different because we are looking at this issue for an adult rather than a child. It’s also strange to think this hasn’t been obvious for all these years when I’d had such a thought so long ago. I think the reason for this is that Lego Lover has always been quite expressive of thoughts and feelings so we always knew a lot about how his mind works. On the other hand Game Fanatic has always kept most of his thoughts and feelings to himself. It’s only been in the last few years that he has shared enough of himself to allow us to understand him better. With this “new” information it’s easier to see how he might well fit into the Asperger’s category. Assuming that a diagnosis does happen, I wonder if I will feel the same relief and finding an explanation as I did all those years ago with Lego Lover.
4 Comments
Valerie
From your descriptions of him, it does sound to me like he may well have Asperger’s. Though of course I’ve never met him, so my opinion is based on extremely random small bits of information and is probably wildly inaccurate. :-P
I am curious what you think of the plan to stop having the diagnosis of Asperger’s altogether and declare that instead everyone with Asperger’s has high functioning autism.
Purple Lorikeet
I’m not quite sure what to make of it. In some ways the terms have been interchangeable at times so it shouldn’t really matter what term they use, so long as those who need it are able to be diagnosed properly.
But then people with Asperger’s identify with that term and taking it away seems problematic to me. I suppose it will just carry on as an unofficial term for the foreseeable future.
What is most interesting to me is that researchers expect there to be more categories of autism recognised over time and yet the diagnostic criteria will lump all types together. I can only hope the changes will be ultimately be more beneficial for all individuals on the spectrum but I guess it will be a few years until we see how it plays out.
This was something I did discuss briefly with the clinical psychologist but he either doesn’t know or won’t commit to comment on how this might affect someone like Game Fanatic, who has yet to be fully assessed. Or, in fact, anyone who is already diagnosed.
I’d be curious to hear your thoughts on this too.
Valerie
Me, I think that by renaming Asperger’s as high functioning autism they are taking away a category that serves a useful purpose. I think Asperger’s really is a specific thing, and the name change it makes it harder to know what a person’s challenges are.
Purple Lorikeet
I can see what you are saying…although here the terms have been interchangeable for many years and are often considered the same. (Lego Lover technically has a dx of autism, with an Asperger’s presentation-this was fairly common when he was dx’d, particularly as it meant a difference in assistance available. I think Asperger’s later did get more assistance but I’m not quite sure of it now. ) I don’t really like the term HFA because so many people with ASD might have normal cognitive skills but don’t truly function well in the world. So calling it high functioning doesn’t seem so accurate to me.